Russian mystical history: Marfushka. Girl without a face. Is the girl mature? The most scandalous photo shoots of young celebrities Predictions, treatment, house cleansing
Little Julianna was born four years ago in a military family. Her father is in the Navy, her mother is very beautiful woman, sister - just an angel ... The newborn girl did not have a face, in the truest sense of the word ... That is, the child is missing more than 40% of the facial bones ... She underwent more than 20 operations, and she will have to go under the surgeon's knife about 30 more times...
The real shock was experienced by the doctors of the hospital in the American city of Jacksonville. A local resident gave birth to a child without a face. This is an x-ray of the skull of a newborn ... Even at the stage of pregnancy, the mother of the child, Tammy, suspected that something was wrong. Doctors said that the girl's lip was deformed. And that was the maxim of the trouble the Wetmores were counting on... 
The girl was born in a very happy and loving family... 
To leave the child in the care of doctors did not even occur to anyone! .. 
Her sister treats her with adoration... 
And he thinks she's very kind and nice... 
She has no upper jaw, no cheekbones, no eye sockets... She also lacks a piece of ear... 
Julianne has to eat directly through her stomach and breathe through her trachea... 
Doctors will never be able to give the girl a new face... 
...however, they will be able to at least partially restore her skull and facial bones... 
Julianna's parents do not despair. "God never sends a person more trials than he can bear. We will prove to the whole world what a wonderful daughter we have," her mother says. 
The British ophthalmologist Edward Treacher Collins in 1900 was the first to give a systematic description of the congenital disease, which thus received his name. Although other names can be found in the medical literature of various countries - Franchetti-Schwachlen syndrome, Berry-Thompson syndrome, and so on. This disease is expressed in numerous anomalies of the bone facial tissues - while the remaining bones of the skeleton are usually completely healthy, the patient has a normal physique. The degree of manifestation of the syndrome can be different, from minor deformations of the facial surface to the almost complete absence of the face in our usual representation.
Patients with Treacher Collins syndrome have a congenital defect of the eyelids, as a result of which the eyes are often directed down. Many people have vision problems up to blindness.
The most obvious sign is the "cleft palate" - the actual failure in place of the mouth with an almost complete absence of the chin and jaw deformity. A large nose is usually accompanied by small cheekbones, which gives the face a particularly disharmonious look. The ears are either very small or completely absent. As a result, due to violations in the structure of the bones of the inner ear, about half of the patients have weakened hearing, often deafness occurs.
The causes of Treacher Collins syndrome are purely genetic. At the same time, its danger lies in the fact that the disease is hereditary in about half of the cases, and the remaining half of the cases are incidents with a nonsense mutation of a certain gene that does not have predictable prerequisites. Thus, there is no guarantee that a newborn will not suffer from Treacher Collins syndrome in any infant. In addition, even in the case of the hereditary nature of the disease, nothing can be predicted in advance: the parents of the “spoiled” gene are usually present in a disguised inactive form, they are healthy. The average frequency of manifestation of the syndrome is 1 case per 50 thousand newborns.
People with this syndrome often appear on television and on the Internet, but the most famous patient is an American girl Juliana Whitmore.
She was born in 2003 and the deformations of her appearance from birth were very serious - it is no coincidence that the press calls her "a girl without a face." Juliana indeed represents the most severe case of the disease, when a person is missing about half of the facial bones. In order for the girl to be viable, by the age of ten she had to undergo about fifty surgical interventions. However, even operations could not save her from deafness, so a special hearing aid had to be implanted - sound vibrations are transmitted directly through the bones of the skull. In addition, Julian serious problems with speech, although it intellectual development fine. But for all that, this is the most ordinary child with normal mental development. She knows how to be happy and sad, loves to play with her sister and loves mom and dad
Juliana is ten years old, she lives with her parents in Clay County, Florida, and for the first time they started talking about her in the news immediately after she was born. Four years ago, she had a new sister - Danika, her age - they are only two months apart - who came to the United States from Ukraine and went to school already in Florida. Danica also has Treacher Collins syndrome, but her case is not as severe as Juliana's. Juliana Wetmore's case is the most severe in the world, according to doctors in Miami. According to the girls' father, if Juliana's condition is "ten" on a ten-point scale, then Danica's case is more likely a "three". During her still short life, Juliana underwent about fifty surgical operations. Danica, according to foster parents, it will take "only" about ten.
Tom and Tami Wetmore, Juliana's parents, said that they had long wanted to have another child, but Treacher Collins syndrome, which disfigured their daughter, is a genetic disease, so they abandoned the idea of \u200b\u200bhaving a biological child and decided to adopt a foster child. Then Tami typed the words "Treacher Collins adoption" into Google and studied all the information available on the Internet at that time on this issue. Six years ago, she found a little girl whose face reminded her of Julian. Her husband says that he was somewhat shocked by how far this girl lived, but the Wetmore couple immediately liked her. The adoption process took two years, but now Juliana, albeit unintelligibly, says: "This is my sister."
Danika will probably need a special hearing aid like "Cochlear Baha", which is implanted directly into the skull. After Juliana received such a hearing aid, her development progressed.
Children with Treacher Collins Syndrome tend to have above average intelligence, and Juliana's surgeon believes that one day she will be able to go to college. Danika's teacher, who grew up in Ukrainian orphanage, also note that she is used to her new life, communicates with great enthusiasm and literally absorbs new knowledge. When she first arrived, she weighed only 14 kg (in Julian it was twice as much), apparently, the diet in the orphanage was not very nutritious, and for the first time in her life she saw a bath, which she loved very much - before that she used only a shower.
The Wetmores have insurance against navy and have years of experience working with experts in the field of Treacher Collins Syndrome. They believe that the adoption of Danika was the right move for them and for her. Both Juliana and Danica, facing the same challenges as they grow up, will be able to rely on each other. Juliana is learning sign language and reading at a fast pace, and her parents hope that she will soon be able to eat and talk better on her own. Alas, all this time the girl was fed through a tube, she herself could only lick the food. Elder sister Kendra is proud of her unusual sisters.
But the Wetmores were in for another twist of fate. Around the same time, they took custody of two little ones, now four and six years old. These are the daughters of a distant relative of Tom, who did not take care of them properly, and the girls were supposed to be under the care of the state. Now there are five children in their house.
P.S. I can already imagine the reaction that why give birth to such children at all, they are a burden for parents and they themselves will not have a normal life .. But through the efforts loving parents now the girl is almost no different from other children. In their place, it would be much easier for me to think that I tried to do everything for my child than to suffer later that I left him in an orphanage or had an abortion, IMHO. I'm very happy for her! =)))
P.P.S. My first post, I couldn't figure out how to put a picture on the thumbnail
That's how Chrissy was before that tragic night, and that's how she became afterwards.
Girl without a face
During a party with friends in March 1999, the girl was shot in the face, which blew off part of her skull where her eyes and nose were. Drunk guys were playing with a stolen gun, claiming it wasn't loaded. Chrissy tried to stop them and only remembers her own last words: "Put down the gun before you kill someone." After that, a shot rang out that forever changed the life of a 16-year-old girl. The doctors didn't make any predictions.
Chrissie spent two months in a deep coma and, waking up, regretted that she was alive. In addition to the absence of eyes, nose and part of the skull, she experienced terrible pain from the fragments remaining in the brain, which the doctors could not remove. Chrissy still uses painkillers to this day. But she has a sense of life, and she is ready for anything to continue to live and enjoy it.
At a school for the blind, where Chrissy learned to read in braille, she met a guy she fell in love with. A year ago, their son was born. The existence of a young mother was overshadowed by only one thing - she cannot show her face to her native little man, and from birth, instead of affectionate mother's eyes, the baby sees only a black bandage.
And recently, doctors were able to help her by making a prosthetic face mask from realistic medical grade silicone. They restored the look of Chrissy's face from old photographs, painted it to match the color of human skin, and even applied makeup. The prosthesis is attached to the bones of the skull using extra strong screws and magnets. To restore the necessary parts of the skull, doctors used a bone from the patient's leg and transplanted the skin.
Despite the pain and horror that Chrissy went through after the injury, she says that if she had the opportunity to return to that tragic night and change what happened, she would not do it: “No, I have everything that I want. I would never want to lose it all!”
Nika Narubina Photo: press photo
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with the bloodiest maniacs, Europe with houses, Japan with terrible ones ... But it turns out that terrible, mystical and inexplicable stories happened in Rus' too. One of them is about a girl Marfushka...
strange photo
A resident of Novosibirsk, Semyon Mikhailovich Zavyalov, flew to Omsk in 1992 for the funeral of his grandmother, A.N. Prokhorova. Going through old photos, he came across a rather strange picture. It depicted a girl wrapped in a scarf and standing in front of a log house. Unusual in photography was that, despite the overall clarity of all the details black and white photography, the child's face was so blurry that it was not possible to make out its features ...
Semyon pestered his mother, Prokhorova's daughter, with questions, trying to find out who this unfamiliar girl was, and what relation she had to their big and friendly family. After much persuasion, the mother told about mysterious events almost half a century ago, which took place in the parental home, which, in addition to her sister and brothers, she herself witnessed.
girl from the forest
This story took place back in 1943 in the remote Siberian village of Skakunovo, located in the east of the Omsk region, where Agafya Nikitichna lived in those years with her four children. Prokhorova's husband had died at the front a year before, and therefore the entire household lay on her women's shoulders. Agafya Nikitichna prepared firewood, mowed hay, fished, and even went hunting with her husband's old rifle. Once, in the early morning of mid-October, through the first snow, Agafya went to the capercaillie. The day promised to be windless, with a slight frost. When the woman went deep into the taiga for a couple of kilometers, bright flashes cut through the twilight sky, followed by thunder peals.
The thunderstorm that broke out at an inopportune time of the year was so strong that the ground under Agafya's feet shook, and wet snow fell in heavy layers from fir and pine trees. At some point, another lightning discharge hit a century-old pine tree, in front of which a woman stopped. The trunk of the mighty tree split like a piece of wood and burst into flames like a bright torch. Frightened Agafya rushed to run in the opposite direction, winding among fallen trees, powdered ravines and hollows, and after a while she realized that she had lost her way from the familiar path.
Meanwhile, the storm stopped as suddenly as it began. Agafya began to look around and suddenly saw that something was getting dark beyond the slope. Her first thought was a bear. The woman began to carefully remove the rifle from her shoulder. The creature moved towards Agafya, who soon, to her amazement, saw in him a little girl in a sheepskin coat and a downy shawl. The girl approached Agafya and calmly said that she was lost. The woman had no choice but to find her way to the village and bring the lost woman to her house. On the same day, Agafya reported the found girl to the village council.
Long interrogations of the child yielded nothing. The girl did not remember where she came from and who her parents were.
The only thing she said was her name - Marfushka. The signs of the girl were transferred to the district center, where the police began searching for the child's parents, and Marfushka herself was temporarily assigned to live with Agafya.
Predictions, treatment, cleansing the house
Agafya's children - two sons and two daughters - met a new acquaintance with joy. The girl was assigned a corner in the house where she could play and sleep. On the same evening, the Prokhorovs, the younger, informed Agafya that their new acquaintance, despite her school age, could neither read nor write, but at times she began to speak very amusingly in some incomprehensible language.
And the next morning, strange events related to Marfushka began to occur in the Prokhorov family. So, after a meager breakfast, the girl looked at the portrait of Agafya's deceased husband, hanging on the wall, and unexpectedly announced that "this uncle is alive and will return in ten years ...".
When Agafya returned from the collective farm late in the evening, the children, secretly from Marfushka, told their mother about her unusual behavior. According to the children, the girl talked for a very long time with someone invisible, got angry with him, and when she stopped talking, she took a broom and swept the whole house. After that, Marfushka dressed and went to the barn, where the Prokhorovs kept a cow - the main breadwinner of the family. Frightened by the strange conversations of a new acquaintance, the children followed her. In the shed, Marfushka first spoke kindly to the cow, stroking her skinny sides, and then suddenly squatted down and began to play with someone. To the surprised questions of the children, she replied that she was playing with a piglet, although in fact the children had not seen anyone.
Alarmed, Agafya decided to have a serious talk with Marfushka. The girl told the hostess that a "gray and evil man" was coming to her house, whom Marfushka drove away and covered up his tracks. Then the girl took Agafya by the hand and led her into the barn. To her amazement, the woman saw a young pig crawling in the corner in the hay and out of nowhere. And Marfushka, meanwhile, told the dumbfounded Agafya that by spring her cow would have a calf with a white spot on her forehead ...
Almost every day Marfushka presented the family with more and more amazing surprises. One night Agafya suddenly fell ill. The woman's temperature rose, her whole body was in unbearable pain, and because of her swollen throat, Agafya began to choke. Her children brought a paramedic, who, unable to do anything, just shrugged and promised to take the woman to the district hospital in the morning.
In one of the rare moments of that difficult night, when Agafya came to her senses, she suddenly felt someone's touch on her. Looking closer, the woman realized that Marfushka was standing in front of her and applying a wet rag to her throat. Soon the pain subsided and Agafya fell into a deep sleep.
Waking up the next day closer to noon, Agafya felt an extraordinary lightness throughout her body. But the most surprising thing was that a large tumor on the left side of the neck, which had bothered the woman since the pre-war times, disappeared without a trace ...
Mysterious Disappearance
After November holidays Marfushka suddenly became sad, completely stopped eating and playing with Agafya's children. The hostess became worried and even invited a paramedic to the house to examine the girl. And the next day, an employee of the department for combating neglect and a representative of the orphanage came to the Prokhorovs, accompanied by a policeman from the district center. With them was the chairman of the village council with a photographer. Responsible officials informed Agafya that the girl's parents could not be found and therefore it was decided to place her in a shelter.
Marfushka was dressed, taken to the courtyard of the house, where she was captured by a local photographer. Just before leaving, Marfushka asked permission to say goodbye to the cow and the little pig. The girl went into a dark shed and ... disappeared. Authorities rushed to find her. All the outbuildings, the attic and the cellar were examined. The police officer was very surprised by the fact that there were no traces in the fresh snow. Neither on that day, nor later Marfushka could not be found ...
All that remains of Agafya from the mysterious Marfushka is a photograph of a girl printed at her request, and memories of an unusual child. But no one managed to see the image of Marfushka's face in the picture received from the photographer.
It was as if someone had deliberately erased the features of the mysterious girl in order to keep them secret from posterity.
In the spring, a calf was born to a cow with a white spot on its forehead. And ten years later, something happened that Agafya could not believe in any way - her husband returned! It turned out that the man was captured by the Germans near Rzhev, and after the victory he spent another eight years in the Stalinist camps.
Afterword
Zavyalov decided to take the unusual photo with him to Omsk. And the night before his flight, he dreamed of a little girl wrapped in a shawl. The child, crying, begged him to stay one more day. Already in the morning, Zavyalov remembered that the figure of the dreaming girl, like two drops of water, was similar to the Marfushka depicted in the photograph.
Believing that his dream was inspired by the impressions of the story told by his mother, Zavyalov did not attach any importance to him and went by taxi to the airport. However, halfway through, the driver of the car suddenly turned the steering wheel sharply to the right and the car collided with a truck parked on the side of the road. The taxi driver began to assure that some girl suddenly ran out onto the road in front of the car, and in order to avoid hitting a child, he made this maneuver.
Due to the accident, Sergei Mikhailovich was late for his flight. And already from the daily news, Zavyalov learned that the plane on which he was supposed to fly crashed half an hour after taking off from the airport.
Last fall I celebrated my 18th birthday. On Friday I celebrated with family and godparents, and on Saturday with friends. My parents are good, so they went to the country for a couple of days, so as not to disturb us. We spent the official part of the day, gave me gifts, ate, and then everyone began to disperse. Only mine is left best friend Tanya, she helped me clear the table and stayed the night, because it was already late, and she was far from home.
At night I woke up from the ringing at the door. I was very frightened, because none of my acquaintances visit me at night. So I didn't even get up to look through the peephole. Tanya woke up later and went to open the door, even though I dissuaded her (in general, she is very brave and her character is fighting). The door opened, and then silence...
I was frightened outright. She got up and went into the corridor. Suddenly the door closes abruptly and Tanya runs into the room. Her eyes were glazed with fear, and her hands were trembling. I asked what happened, but she could not connect two words.
A minute later the doorbell rang again. Now I was determined and went to open. Tanya begged me on her knees not to do this, but I wanted to know who was there. At first I looked through the peephole, but I didn’t see anyone, I thought that someone was playing around. But the door was opened.
There was a girl in a pink sarafan, and in her hand she held a toy. Her hair was white, which scared me a lot. I asked her where she came from here, but did not hear an answer. Then she turned... She didn't have a face... More precisely, it looked like a bloody mess without eyes, nose and mouth. She stood in front of me, and my heart almost stopped from fear. She was breathing heavily, as if she wanted to tell me something.
Then she extended her hand - she did not have three fingers ... I immediately closed the door and fell to the floor - it was a shock, I did not understand what was happening. Tanya ran up to me and helped me up. She told me that my face was white with fear, and my hands were shaking violently.
We couldn't sleep that night, we just sat silently in the kitchen drinking coffee. These terrible shots flashed through my head until the morning, I could not believe it. At 10 o'clock in the morning, a neighbor called at the door - a very nice woman. She was worried about us, because at night she heard our door slamming several times. We told her everything, but did not hope for understanding.
How surprised we were when she told us a story about a girl who was killed 4 years ago in the basement of our entrance. She was mutilated to such an extent that at first it was difficult to recognize. When my parents arrived, we told them everything. Oddly enough, they believed. We soon moved from there.
A few months later, I found out that my neighbor was put in a psychiatric hospital because she kept talking about this girl coming to her.